In her presentation, Professor Tsinorema outlines key ethical concepts and challenges related to data sovereignty and sustainable openness.
Data Sovereignty vs. Data Ownership
"We are our data. We don't possess our data: the violation of personal data is a violation of personality rights. That's why I don't want to talk about ownership, but sovereignty."
Data control should be viewed through the lens of "sovereignty", i.e., legitimate political authority and control, rather than mere "ownership," as personal data inherently reflects human personality rights.
Harmonising Data Sovereignty and Openness
While open science is a core scientific value vital for reproducibility and the public good, unconstrained access is not automatically ethical. Openness must be harmonised, rather than strictly balanced, with data sovereignty and security. Responsible stewardship entails harmonising societal benefits stemming from collaboration and open science with legitimate protection of data subjects, communities and institutions against unauthorised second use.
Challenges
- Limitations of traditional consent: In the context of AI, big data, and interoperable datasets, standard individual informed consent models and traditional anonymisation/de-anonymisation polarities are no longer normatively sufficient to protect human subjects. Datasets may be harmless, but when combined, they can expose vital information in unpredictable ways;
- AI and algorithmic concerns: The increasing use of AI in data processing raises significant ethical concerns, particularly regarding algorithmic bias when utilising datasets that lack diversity or high quality;
- Ecological risks: Energy-consuming digital infrastructures create environmental costs. Such costs for data use and preservation must be always clearly justified by scientific and societal value;
- Security tensions: Unrestricted open data carries inherent security risks, including malicious or illegitimate dual-use, harmful cyber attacks, and exposure of geopolitical vulnerabilities.
Data Sovereignty by Design and Sustainable Openness
The traditional standard of "as open as possible, as closed as necessary" should be refined to: "as open as possible, restricted as ethically required, and sustainable as reasonably possible," relying on human ethical judgment and graduated access.
Ecological sustainability, security, and data sovereignty are not merely external restrictions added onto research, but core intrinsic components of conducting open science responsibly. Success relies on developing a robust governance framework that integrates strong data stewardship with ethical standards, which are essential for the quality of scientific work.
How much openness is ethically justified? Which types of data should be accessible to whom, for what purposes, and under which authority? Answering these questions requires the scientific community to engage in continuous dialogue and re-evaluation of ethics assessment tools and guidelines.